Thursday, September 29, 2016

Irritated

So much on my mind.  I want to first apologize in advance to my English teachers who may read this because it's going to be jumbled up and things are all jumbled in my mind right now.

* Jordan loves rubber braclets.  You know, those that are typically seen worn by children!? Ha. He wanted to order 4 JDRF (Juvenile Diabetes Resoure Foundation) braclets for the 4 of us but low and behold, you can only order 100 at a time so he ordered .. 100.  So, if anyone would like to sport a blue rubber bracelet that says "JDRF     Creating a world without T1D" on it, let me know.  I'll gladly send one to you.  We are not taking any money for it - if you wish to give money, donate to JDRF or ADA (American Diabetes Assoc) instead!  I said to the kids that we should give them out at Halloween this year instead of candy and both kids love the idea!

* Trey's nurse is nothing short of an angel.  God knew how worried sick I was about sending my child to school and how nervous I was about who the nurse would be and if she would really do what needed to be done. He didn't fail me.  If you ever meet a Heather Osborn who is a nurse at OMT, please give her a huge hug and tell her she's an angel.  She keeps me updated all day long on Trey.  He absolutely adores her.  He loves skipping recess to hang out with her.  They have a bond and it's way more than I ever could have wanted for my son. She goes above and beyond for Trey and I can never, ever thank her enough.  (She just messaged me as I was typing this blog. She did an extra finger poke on Trey b/c his CGM said HIGH and she was worried.  CGM was wayyyy off so I'm glad she poked him for a true BS number)

* JDRF made a huge announcement yesterday that the first Artificial Pancreas was FDA approved to be released in 2017.  Great news, right??  Hold up.  I'm bothered by this.  I expected more from JDRF.  Now people who are non diabetics are thinking "It's the cure!!! Everyone with diabetes can now have the AP!"  Wrong.  SOOOOOOOOOO wrong.  Disappointment is huge.  Let me educate you a bit.  The human pancreas gives you both insulin and glucagon.  It gives you the perfect amount based on the carbohydrates/sugar/food in your body.  To duplicate that is hard, which is why there is not a cure for diabetes.  It's being worked on ... There are several companies out there doing trials and testing and really trying to figure out how to make an artificial pancreas.  What the announcement was for yesterday was for a insulin pump company, Medtronic, who has released a new, updated pump.  What this pump will do is great and it is a step in the right direction for the AP, but it is NOT the AP!  You read that right .... It's NOT an AP!  This pump will work with it's own CGM to help adjust the basal rate of insulin and administer it automatically. (Yes, I know, I've already lost some of you ... Keep reading).  You will have to still plug in your carb totals for each meal/snack and you still have to do finger pokes (face it, diabetics will always have to do finger pokes.) There is NO glucagon in this new Medtronic pump which means it is NOT the AP.  So again, this new pump is a step in the right direction, but for JDRF to call it the AP is false.   (And read above where I said the CGM was way off today for Trey - CGM is not always accurate and if this automatically affects the amount of insulin given --- it could be fatal.)

* With that being said, we are anxious to get to Sioux Falls and learn about the pump.  Trey's pump (also from Medtronic) will hopefully bring down his blood sugar numbers since he will be getting continuous insulin all day long.  We are still fighting higher numbers than what we would like and I'm racking my brain trying go figure out what I can do to change that.

* FOOD ... I hate food.  I make a menu for my daycare lunch, daycare snacks, Trey's lunch and our family supper.  I pack Trey's lunch every day.  Sometimes I pack Delanie's lunch.  I pack a box of snacks for Trey's school. I feel like everything I do is about food.  I just had to throw that out there because I feel like this was a total RANT post so why not let it all out, right!?

* Something that cracks me up is this:  Last Friday I attended the Groton FB game here in Aberdeen. I pull up to Wylie Park campground to pick up my mother and I was asked, "Where is Trey?"  I walk into the football .. Stadium? ... And was stopped by an old HS friend.  She asked how Trey was.  I continue walking up to sit down and a former teacher of mine says, "No Trey??"  I sit down by my aunt and she asks, "You didn't bring Trey?"  Trey Trey Trey Trey .... You're so popular and you don't even know!  Or do you!?