This summer has flown by. Last entry was June 7th!?
This time lat year, I was a friggin mess. I was preparing to send my baby off to Kindergarten to a school who had no other T1 child in it. I was printing off page after page to make up a dozen folders full of Diabetes information for his teachers. I was angry with the principal for giving me the run around over the 504 meeting I had requested.
This year??? I can't wait for Trey to go back to school. It's been a short - but yet long summer with both kids home with me. I forgot how much work it was dealing with his diabetes care 24 hours a day and not getting that little 8 hour break during the day when he's in someone else's care. While I still read his CGM readings and text back and forth with his nurse multiple times a day -- she is the one who had to handle it all. I also cannot wait for him to get back into a routine. Getting up at the same time, eating lunch at the same time, having recess at the same time. All that routine honestly helps a T1 out. He needs it.
We had a Endo appt in July and I was certain his A1C level would be fairly good because even though we had that month of sneaking food, he seemed to be doing better in July. Based on the Dexcom graph, things looked to be under 7.5. Bloodwork said otherwise. Defeated. It's like I was flying in a hot air balloon with 7.5 and the day the phone call came, someone popped that damn thing while I was 3000 feet in the air and I came crashing down.
I added basal rates, I adjusted his lunch ratio and I decided instead of being OK with 200 blood sugars ... 200 was our new 300 and it just couldn't happen anymore. In fact, when I see 180 on the CGM I start giving a mini-dose of insulin to help stop it from getting any higher. I reached out to my ModSquad group for help because I swear .... this group of 8,000 men and women know EXACTLY how to help me. They suggested I begin pre-bolusing Trey at meals. We've done this some in the past and it always back-fires on us, but I was ready to deal with it and make it part of our new routine to see if it helped. Can I tell you .... it DID help!!!! While it's hard for Trey to sometimes to full-fill his carbs he needs to eat, there is always a few skittles or a 1/4c chocolate milk he's willing to have to be sure he's got the carb counts right.
We're far from perfect ... we're sitting at 164 average the last 7 days (we also had a 4 day vacation to Cedar Lake Speedway right in the middle of this new pre-bolusing deal) which is pretty good, but I would LOOOOOVVVVVVEEEEEEE to see that at 150. We don't go back to the endo until November, but 8.9 A1C just cannot happen again. When doc says, "He's still under 10." that's not good enough for mom. Under 8 is where I insist we be ... and therefore I'll keep plugging away at trying my damnest to make that happen.
School ... less than two weeks ... cannot wait. Such a different story this year. I'm confident in his teachers, the school staff and have the utmost belief in Mrs Osborn, the nurse, to keep my guy healthy under her watch. Such a relief for me this year.
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